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MRS GREN would like to have a word with you :)


> It has always bothered me that by "spectrum" they mean not the sort of continuous thing

Oh but they do. the "spectrum" is by how socially acceptable someone's autism is.


> how socially acceptable someone

I intuitively understand this but has it been clinically defined?


DSM-V [1] describes criteria / symptoms in two groups (caps from document, sorry):

> A. PERSISTENT DEFICITS IN SOCIAL COMMUNICATION AND SOCIAL INTERACTION ACROSS CONTEXTS, NOT ACCOUNTED FOR BY GENERAL DEVELOPMENTAL DELAYS

> B. RESTRICTED, REPETITIVE PATTERNS OF BEHAVIOR, INTERESTS, OR ACTIVITIES

For criteria A, severity is more or less measured by how much social impairment is observed --- that's a measure of social acceptability in some fashion.

For criteria B, the severity criteria is about "interference with functioning in contexts" as well as observed distress of the patient. Interference with functioning can be related to the patient resisting the desired function, but it can also be because the patient is socially excluded due to their behavior.

Although, I should point out clinical criteria in general and the DSM in specific are a formalization of arbitrary judgements that describe observable characteristics grouped into a diagnostic category; this can be useful, but it's not really an understanding of the underlying condition(s), it's a handbook of things to look for when a patient comes asking for help and what things to try to help them. If someone has the same underlying conditions but manages to pass as socially acceptable, they may not come in for help, and that's fine too. When multiple underlying conditions result in similar observable criteria, the DSM gets pretty confused; there's not much in the way of attaching traces and getting debug logs for mental processes though, especially out in the world, so this is the best society has, I guess.

[1] https://depts.washington.edu/dbpeds/Screening%20Tools/DSM-5(...


"Society's acceptance of a person who has a condition", and "a condition that inhibits social interactions" are two entirely different things.


If I persistently ask awkward questions, that might "inhibit social interactions". If my community was tolerant and even accepting of this behavior it might not inhibit social interactions quite as much. They are different things for some behaviors but extremely closely related for others.


A specific behavior could qualify as both unaccepted by society and inhibiting social interactions. But that doesn’t mean that being unaccepted by society and having inhibited social interactions is the same measure.


It is not just about societal tolerance. It is also about autistic person having complete emotional meltdown with yelling abusive things or even hitting things because something was not exactly to his/her liking. You can "tolerate" that, but then you are just allowing someone else to be abused.

And even in milder cases, the "does not understand social rules" is sometimes or even frequently euphemism for what would be labeled as abusive or cruel or simply selfish behavior for non autistic person.


> It is also about autistic person having complete emotional meltdown ... because something was not exactly to his/her liking.

This usually happens when the person's needs have been repeatedly ignored, either because the person isn't aware of their needs, and thus isn't able to communicate them; or because the person has tried to communicate their needs but not been understood; or because the person has tried to communicate their needs and had their needs disregarded.

This isn't unique to people with neurodivergence.

> with yelling abusive things or even hitting things

Eventually communication fails and all that's left is violence. History (and the present day) is full of examples of this happening on an individual, national, and planetary scale.


> This usually happens when the person's needs have been repeatedly ignored, either because the person isn't aware of their needs, and thus isn't able to communicate them; or because the person has tried to communicate their needs but not been understood; or because the person has tried to communicate their needs and had their needs disregarded.

This is not true. Low emotional control is one of symptoms and for many autistic this is just a default response. It is literally part of diagnosis. There is no space for needs or rights of others. This is response to someone putting a cut into drawer wrong way or disobeying one of thousands weird rules the autistic person have for themselves and the world.

This frequently happens as a first response to the situation, before any communication could possibly occur.

> Eventually communication fails and all that's left is violence.

Autistic person being violent is violence as any other. And there was no attempt at communication, because man autistic dont understand why the thing needs to be communicated in the first place. They dont understand other dont see the word the same way.

And even more importantly, it is an emotional meltdown having nothing to do with what went on with communication before or not.


I suspect part of your parent comment's point is that this is an implicit bias in the way the spectrum is defined and thought of, so it wouldn't be clinically defined in those terms explicitly.

In other words, the "spectrum" doesn't exist to capture the variation in the autistic person's own experience - if it did, it would look very different. It's a remnant of a time when autism was seen as just a "problem" for the people around you, and the spectrum measures how much of a problem you are and how weird you are seen by their measure; which does map onto a continuous line in the same way.

That does capture something useful, but only a small part of what autism actually comprises, and is much less useful at capturing the autistic person's own experience of it, and makes it a less useful tool to them than people might assume.


It's not unusual for diagnostic criteria to hinge on the impact the thing is having on your work/family/school life.

Alcoholism, for example - we don't define alcoholism as drinking ≥2 bottles of wine a week, or say that 1 glass of wine a week is part of an alcoholism spectrum.

Instead, we ask whether drinking often interferes with taking care of home and family; or leads to job/school troubles; or has lead to getting arrested.

How much of a problem an alcoholic is for others being roughly equal to how much of a problem alcoholism is for the alcoholic.


> Instead, we ask whether drinking often interferes with taking care of home and family; or leads to job/school troubles; or has lead to getting arrested.

We don't ask just that, and the diagnosis doesn't hinge on those - in fact those account for only 3 (or 4 depending on how you count) of the 11 diagnostic criteria for alcohol use disorder. The others are about the person's own experience with alcohol, the difficulties and psychological problems caused by it to the person themself. And that's for alcohol use, an external behaviour-based problem with a specific narrow scope. Autism is a much wider construct with much more varied impact and experiences, and yet in practice people are placed somewhere on the spectrum based mainly on external interactions and troubles.

Historically this came about because people who were "low-functioning" caused more difficulties to others, whereas "high-functioning" folk didn't - even though they might have comparable amounts of difficulties and psychological anguish internally and in need of similar help too. This simplistic view is changing slowly within the field and with some therapists recognizing it better for what it is, but it's still not nearly as widely recognized as it needs to be.


> It's a remnant of a time when autism was seen as just a "problem" for the people around you

I think it still is the current approach, and is not a bad thing per se:

People can have their own specific conditions, but if they are considered fully functional they will have no business getting clinically diagnosed. It will only be relevant when it reduces social functions, and becomes a problem, so that's the part that will be diagnosed.

To put another way, there is the biological/research part to understand how people work and how they think and behave, and the medical part to "fix" things. The variation of people's experience belongs in the former, the autism spectrum belongs to the latter.

Of course we do this for most conditions: for instance people's voice are all different, if yours is just "weird" but intelligible you won't go get a diagnostic, if half of the people can't understand what you say you might need one, whatever the biological cause is.


As someone who has "successfully" masked for the majority of their adult life, all the while suffering in silence, I can say that this is a problematic take at best.

I am considered a "fully functional" adult from all outward appearances, even to friends and family. I'm lucky enough to be capable (with great internal effort) of typical "normal" things like participating in meaningless smalltalk, holding down a job, and doing all of life's chores just like "everyone else." However, unlike everyone else, I had to practice and endlessly rehearse things in my head to achieve the outcomes I desired. A charitable interpretation of your words would mean that "it's a problem", but who is it a problem for? The folks around me? Certainly not. This is invisible to others. It's akin to running monte carlo simulations of all permutations of outcomes before acting on decisions that others would consider trivial. For years I thought that was what everyone was doing. I eventually learned that "no one" did this, and I trained away all "problematic" characteristics of myself just to keep up the act.

So in lieu of your implications that 'passing' autistics "have no business getting diagnosed", I'd rather propose this instead: seek a diagnosis if your condition is debilitating in any way shape or form and would benefit from treatment, _regardless_ of whether or not your condition is externally visible or even apparent to others. A "fix" should be sought if you are suffering. There is no cure for autism, but there are many programs and medications that can help.

PS That said, it may be unwise to disclose your diagnosis to say your employer, unless you need specific accomodations for your set of symptoms at work. I speak from experience.


I didn't mean to imply masking doesn't come with a disadvantage, and I sympathize with the efforts needed in places where others have no stress.

Still IMHO the bar to treat it as a medical condition is higher than that. To take another example, one can be hyper reactive to dust, and that has surprisingly wide impacts on everyday life. House maintenance becomes critical of course and interior furniture will reflect that (e.g. a long fur carpet and other hard to clean convoluted forms are out of question). It also bars the person from whole categories of shops ans places, old libraries is often a no go, some shops/restaurants using encent or heavier room flagrance will also trigger a reaction. There will be whole categories of jobs that are also not an option.

This kind of predicament will make everyday life a lot tougher and require significant effort, yet IME will not be categorized as a medical condition until something critical happens. Like an asthma crisis that ends at ER for instance.

It is not "fair" in the sense that successfuly dealing with the health/mental issue is kinda taken for granted, but I also understand why we draw a line between conditions the person can deal with alone, and other conditions that require external intervention.


I could "deal with it", until I couldn't. When a seemingly fully functional person with no warning signs suddenly breaks down (often catastrophically), providers scramble and tend to misdiagnose since they're missing key criteria. Without a formal diagnosis, it can look like severe depression or psychosis or a number of other similar conditions that have very different treatment plans. Autistic burnout treatment is something entirely different, although it can present the same. A prior diagnosis would at least point them in the correct direction for treatment.


ASD is defined by the level of support the individual needs. It says nothing about “fitting in” or by pain or anything else like that


having friends is a level of support though


Has social acceptability in any context ever been defined, beyond say, rules of etiquette? It's a free market and everyone is arguably entitled to test to see what it will bear.


The entire nature of the field of psychology and mental health treatment is relative to pain and dysfunction.

If people fit in well and didn’t have issues (either internal pain/suffering or society interaction pain/suffering), they are not applicable to the field.


This is key and what makes something a disorder.

Everyone experiences some obsession or compulsion. But only some experience it to the degree of a disorder.

Just like everyone has some “autistic” tendencies. But it is only a disorder in some.


Health Insurance Portability and Accountability Act, for us non Americans


Always wondered how much this much traffic is. Would love to see a behind the scenes view of the numbers of requests made


The peak is a handful of requests per second. If you have a static site, the cheapest Hetzner tier handles it just fine.


Nominative determinism at work


Getting 2k users is no small task, congrats.

Did most start using it when it was a free spreadsheet linked to a reddit post or have the 2300 users all bought the $4.99 product?

Has there been a change in take-up since you monetised it?


Most free, but a lot still buy! Surprisingly only ~50% less paid signups compared to free signups.


Sounds like the tech wasn't deployed for "Refund Fraud" (it would be easier to just use facial recognition when a refund was made) but instead deployed across all stores to see what they could do with the data.

I'd be very surprised if refund fraud was the only POC that this facial recognition data was used for.


Sadly been going to HomeDepot long enough to have been there before all the cages were put up. E.g. if you want a small roll of wire, gotta find an associate to open the cage, get the wire, and walk with you to checkout to make sure you pay. I asked once if all the was necessary, and the experienced associate related some real horror stories such as folks putting a 200 ft roll of 4 guage onto a cart and simply walking out. That is impressive both in regard to the brazenness, and because someone could lift such a roll onto a cart (likely with a partner, but still).


The cages are used in stores with high shoplifting rates. They aren't in all stores.


And?


Never had to do this at home Depot. Your local area is just a high shoplifting area.


Where I live it's the same at Target, CVS, Walgreens. Lots of stuff is locked up and you have to get someone to open the cages


> I'd be very surprised if refund fraud was the only POC that this facial recognition data was used for.

The only conceivably legal POC.


Of course, but fraud/theft prevention is easier to defend legally. There are exceptions for exactly those use cases.


I heard stories about how super advanced invasive surveillance let's people like Target know that you're pregnant before you actually know yourself. But I just don't buy it.

I get insane advertisements, even from places like YouTube that know me well. I get advertisements for Bumble featuring what looks like a teenage boy telling me you'll never know what you'll find on Bumble, which is weird considering I'm a married straight dude. Sometimes I even get ads in different languages.

If the most advanced ad network can't figure out the language that I speak, I'm less worried about Kmart doing some nefarious profiling based on my stride.

I like technology that targets fraud, because I like living in a high trust society. I'm annoyed that people abuse the system and that's why we can't have nice things. You could probably just target the worst 1% and basically go back to deodorants not being locked away behind glass.


> I heard stories about how super advanced invasive surveillance let's people like Target know that you're pregnant before you actually know yourself. But I just don't buy it.

I believe it. But it wasn't super-advanced surveillance. It was, as I recall, 2010's "machine learning" basically drawing inferences about purchase history to determine what sorts of personalized advertisements to mail to you or print on your receipts, or whatever.

I believe it because I worked at another large American retailer similar to Target at the time and though I was not directly involved, I was aware that other departments in our company were working on similar things. It wasn't that advanced or outlandish, it was just finding trends in the huge amount of historical purchase data we had. I can absolutely believe that it was similar at Target. People who bought these things typically bought baby-related stuff 3-6 months later, so lets send them some coupons for that baby-related stuff in 2 months. It's unlikely the fact it was baby-related was actually relevant, it probably just sent coupons for whatever the predicted purchases were.

An individuals purchase history was probably correlated either by rewards program membership (preferred) or credit cards used. If you just paid cash and didn't use swipe your membership card, it was unlikely the purchase would be associated to you.


The story behind how Target found out a teenager was pregnant before her dad was is very interesting, and really gets me thinking what will happen when they monitor my behavior in-store.

https://www.forbes.com/sites/kashmirhill/2012/02/16/how-targ...


Kmart secretly knowing that you are pregnant or you have colon cancer or whatever is not what I'd be worried about.

I'd be worried that they will either collaborate or get infiltrated by hackers, cops, and agencies. Then, one day I like a post on social media promoting wrongthink, and I'll be picked up.


> If the most advanced ad network can't figure out the language that I speak

The ad network absolutely knows you down to minute detail, but the only thing that matters is who bid the highest. Maybe the winner is the one with the most VC cash to burn?


Proof of Concept?

Person of Color?

Point of Contact?


Either their CISO was shut out of the decision making, the SLT decided it was a risk worth taking, or their CISO was absolutely asleep at the wheel.


> Why choose this type of subject matter to draw conclusions from?

Because they were English Lit students, and the paper was to see how modern students interpret and understand literary modes such as simile, metaphor and their underlying meaning.


Meanwhile, Dickens went to school for only about four years, with a break in the middle to work in the boot blacking factory.


It'd be interesting to see how the visuals change when you're viewing the path, rather than a filled area.

Not seen one of these tables with two balls in... You'd probably need quite a lot of height to offset the linear sliders so didn't collide with each other.


_Hiring a disabled person legally at $1.75 for half an hour per week_

...but morally?


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